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Author: Arvin Alvea

Osteoporosis Canada and Willful

Osteoporosis Canada helps educate Canadians on the importance of bone health and improve the quality of life for those diagnosed with osteoporosis.

Many supporters of Osteoporosis Canada find peace of mind knowing they have provided for a charitable organization that has enriched their lives or the lives of their family members. Legacy gifts are important sources of revenue for research and other projects and may provide you with various tax benefits.

Osteoporosis Canada is proud to partner with Willful, a simple to use and secure online tool that will walk you through, step by step in setting up your will.

As part of our partnership, you will receive $20 OFF any Willful plan with the code OSTEO20 which will be donated to Osteoporosis Canada.

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Why Do I Need A Will?

A will ensures that your wishes are known by your family and the law when you pass away. It contains important instructions on how to distribute your assets, who will be in charge of closing up your estate, who should take care of your children and/or pets, and which charities you’d like to leave gifts to. It ensures that you’re in the driver’s seat of these key decisions rather than the courts. It also cuts down on the time and cost of settling your estate, meaning that your beneficiaries will be able to receive the gifts you’ve left for them much quicker.

Without a will, the government uses a provincial formula to distribute your estate and appoint people to take on key roles like executor and guardian. Their formula may leave out important people and charities that you would have liked to support or name people for important roles that you might not have chosen yourself. Dying without a will also involves delays, expenses for your estate, and added stress for loved ones during an already difficult time.

Leave A Legacy Gift To Osteoporosis Canada

A legacy gift (or bequest) is a gift in your will left to a charity, school, or non-profit organization. It can be a piece of property, cash amount, or percentage of your estate. Legacy giving enables Osteoporosis Canada to educate, empower and support individuals and communities on bone health and in the risk-reduction and treatment of osteoporosis. Even a small gift makes a huge difference when you’re gone.

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How Do Legacy Gifts Help Organizations Like Osteoporosis Canada?

An AngusReid survey commissioned by Willful found only 12% of Canadians plan to leave a gift to charity in their will. Willful is working hard to increase that number! Since Willful’s launch, they’ve enabled over 7,000 gifts left to charities in wills with over $30 million in cash gifts alone. No matter how small the legacy gift, a little goes a long way. By leaving a gift in your will, you will be leaving a legacy that supports over 2 million Canadians affected by osteoporosis.

You can learn more about leaving a legacy with Osteoporosis Canada here.

How Do I Leave A Legacy Gift For Osteoporosis Canada?

People often expect legacy giving to be a lengthy, complicated process. With Willful, leaving a legacy gift is simple and involves just a few clicks. After the Special Gifts section where you assign property and lump sum cash gifts to beneficiaries, you will see our charitable giving section that allows you to leave a lump sum to Osteoporosis Canada or another charity of your choice!

It’s simple to leave a gift to Osteoporosis Canada.

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If you prefer to leave a percentage of your residual estate, you can add a charity as a beneficiary. (Your residual estate is everything left after debts and taxes are paid and specific gifts are distributed).

Use the following promo code to receive $20 off when using Willful: OSTEO20

Work with your legal advisor

If you choose to work with your legal advisor and/or financial planner to remember OC in your will – contact us to learn about the various ways to leave a planned gift.

Create your will with Willful

Willful is a simple to use and secure online tool that will walk you through, step by step in setting up your will.

If you are working with a legal advisor and/or financial planner provide the following information at your appointment:

Legal Name: Osteoporosis Canada

Charitable Registration Number: 89551 0931 RR 0001

Contact: Tracie Napoli, Director, Fund Development & MARCOM

Phone: 416-696-2663 / 1-800-463-6842 ext. 2286 Email: tnapoli@osteoporosis.ca

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Making A Will 101

No one likes to think about emergency planning but 57% of Canadian adults don’t have a will, and that number goes up to 89% among millennials. Having a solid estate plan in place is a key part of “adulting” – just like getting insurance or an RRSP. Wills can be confusing though: who needs one, what are they, and what do I need to know to get one in place? In this webinar Willful will guide you through will basics, bust some myths, and up your estate planning knowledge. We’ll also highlight legacy giving basics.

Willful is a simple to use and secure online tool that will walk you through, step by step in setting up your will.

Use the following promo code to receive $20 off when using Willful: OSTEO20

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Virtual Cooking Class: Fast-Fry Steak and Eggs

Watch Emily Richards, Professional Home Economist demonstrate this easy to get on the table recipe for Fast-Fry Steak and Eggs. Another great recipe that can be tailored to cook for one or two or more! Every day ingredients come together to provide a hearty meal with 42g protein and calcium 225 mg per serving.

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Lindy Fraser Award 2021

On behalf of Osteoporosis Canada’s Scientific Advisory Consultants and Osteoporosis Canada, we would like to announce this year’s Lindy Fraser Award winner as chosen by the members of the SAC.

Osteoporosis Canada established this award in 1993 to recognize individuals who have made an outstanding contribution to the field of osteoporosis research and education in Canada. The award is named in honour of Lindy Fraser, who in 1981 at the age of 87, started the first self help group for people with osteoporosis.  She herself was an inspiration to others as she shared her struggle to get out of bed, into a wheelchair, then to walk again with a cane.  In 1982, she answered a call from a small group in Toronto to take part in the first national symposium on osteoporosis.  That appearance was the spark that gave rise to Osteoporosis Canada.

This year’s award winner, Dr. Sid Feldman has shown immeasurable dedication and determination in the collaborative effort to achieve the common vision of Canada without osteoporotic fractures. We cannot think of a more deserving individual.

Dr. Feldman is a community family physician affiliated with the North York Family Health Team. He also works as attending physician in the Toronto Central LHIN Behaviour Support Unit at Baycrest for residents with behavioural symptoms of dementia. His academic and administrative roles at Baycrest include Medical Director, Home for the Aged, Executive Medical Director Residential and Aging at Home Program and Chief, Family and Community Medicine. Dr. Feldman is an Associate Professor and inaugural Head, Division of Care of the Elderly in the Department of Family and Community Medicine, University of Toronto and serves as the Chair of the Members Interest Group in care of the Elderly, College of Family Physicians of Canada. 

Dr. Feldman has been an active member on many SAC committees including the executive, the guidelines and the knowledge translation committees. He also chairs the CPG Fracture Risk Assessment working group.

He has also recently received the 2021 Department of Family and Community Medicine (DFCM) Award of Excellence as the Academic Family Physician of the Year from the university of Toronto.

Congratulations Dr. Feldman!

Dr. Sid Feldman holding the Lindy Fraser Award
Dr. Sid Feldman
2021 Lindy Fraser Award Winner

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B.C. PharmaCare Patient Voice Survey For Osteoporosis Therapies

The B.C. Ministry of Health is conducting a survey of patients, caregivers, and advocacy groups to achieve input regarding osteoporosis therapies in British Columbia and B.C. PharmaCare coverage.

We know that coverage for osteoporosis medications in British Columbia is among the worst in Canada. All treatments for osteoporosis covered by PharmaCare require a “special authority” form to be filled by a physician and the criteria for special authority are very restrictive.

For example, to achieve coverage for certain therapeutic agents, a patient requires a fragility fracture and either an allergy to bisphosphonate or an obstruction to swallowing a pill.

Intolerance, other contraindication to oral bisphosphonate, and even failure on oral bisphosphonate therapy are not included in the criteria for special authority.

  • That means that if you do not tolerate your oral bisphosphonate (alendronate, risedronate weekly pills) you cannot have coverage for an effective treatment.
  • In addition, if your bone density is declining on oral bisphosphonate or you have fractures on oral bisphosphonate, treatment failure is not a reason for a successful special authority application.

The Ministry of Health is soliciting patient input.

Please consider making your voice heard as this may benefit not only your circumstance but that of many other osteoporosis patients in British Columbia.

Patients, caregivers and patient groups can share their experience and opinions with the B.C. Ministry of Health by completing a Your Voice survey.

PharmaCare regularly reviews drugs to decide if they should provide coverage for people enrolled in PharmaCare plans.

PharmaCare considers the drug’s safety, how well it works and how expensive it is, among other factors. It usually takes about 15-20 minutes to fill out a survey.

If you are a B.C. resident, you can give input if you:

  • Have the medical condition that the drug would be used for
  • Are an eligible caregiver for someone with that medical condition (a caregiver in another province would have to say yes in order to be able to complete the survey), or;
  • Represent an eligible patient group for B.C. patients with that medical condition
  • This is your chance to improve access to osteoporosis medications in BC

The patient and caregiver survey will only be available on the B.C. government “Your Voice” website from October 20 to November 17, 2021.

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Travelling with Osteoporosis – Part 1

As pandemic restrictions begin to lift, you may be thinking about travelling. Today, in addition to considering your plans to travel with osteoporosis you must also be clear on travel restrictions and protocols regarding Covid-19.

Do you know what the requirements are regarding vaccinations to enter another province or country? For example, do you need a vaccination passport or covid testing either before leaving or on coming back to Canada? Given that details surrounding travel during the pandemic can change as new information becomes available, make sure to check the Government of Canada website for the most current information on travel requirements at https://travel.gc.ca.

It is possible to travel safely and enjoyably with osteoporosis, but there are precautions that need to be taken, as well as those related to the pandemic.

Before You Start!

Have a clear understanding of your physical and medical needs, limitations and abilities. This understanding will help you to choose a suitable destination and means of travel. Consider using a travel agent who can assist in both planning and booking a trip that meets all of your requirements. You or your travel agent should contact the airline, train line, tour companies, hotels or cruise ship to be sure that they understand and can accommodate your needs.

Your doctor can also advise you about any necessary vaccinations (apart from covid) for your trip or if you need to update any previous vaccinations. Some vaccinations can take up to six months to administer, so be sure to start this process early rather than waiting until shortly before your departure.

Keep records so you know what to expect on each leg of your journey. Accessibility standards vary from country to country, so be prepared to describe in detail the support or features you may need. For example: wheelchair assistance at the airport, extra leg room on the airplane, a seat near the aisle, a special diet, etc.

Consider travel and medical insurance because medical care in a foreign country can be very expensive. When purchasing insurance, make sure you understand age restrictions and coverage for pre-existing conditions. See your doctor for a check-up well before your departure to minimize the chance of any changes to your medications and treatment shortly before your departure.

You will also need cancellation insurance because there is always the possibility that something may happen at the last minute that requires you to change your plans.

The All-Important List

It is never too early to start making a detailed list of the things you will need. Maintain a file of important papers, contacts, identification and travel documents. If you rely on your smart phone to store and manage these files, be mindful that some countries offer only limited internet access and ability to process phone transactions. Take with you a duplicate paper copy of the most important information.

List the items that you typically use and plan how to pack them so that they will be easily accessible on your trip. Are there special items that you use to help you in the kitchen, bedroom, bathroom or the car?

1) Mobility aids – Do you need a cane, walker or wheelchair all the time or just when you need to walk long distances such as in an airport, or a bus or train terminal? Consider the terrain of your destination – level ground, paved, cobblestones, lots of stairs? Will the destination be accessible with a walker or wheelchair?

Most airports and some other travel companies will provide wheelchair and other mobility services. Contact the airline, bus or train line in advance if you need this temporary service.

If you need a mobility aid all the time, consider bringing your own. You should contact the travel line ahead of time to ensure that they can accommodate your mobility aid, especially if it is a walker or wheelchair, because larger aids will require some form of storage while you travel.

If you do not need a mobility aid but you tire easily, consider bringing along a fold-up cane or lightweight folding chair, as tourist attractions often have long waiting lines. These items are available in home healthcare supply stores and/or in camping stores.

If you use aids to reach or pick up, don’t forget to bring your reacher, a daily living aid to help you grab out of reach items. Folding reachers are available.

2) Back and neck supports – If you are planning a long flight or a long bus or train ride and you suffer from back or neck pain, consider bringing along a portable back support that will fit into the seat of the plane or bus and a curved travel pillow to support your neck. These can be found in almost any home healthcare supply store.

3) Flashlight – A pocket flashlight may help you see where you are walking on unfamiliar streets or in an unfamiliar room. A small flashlight or book light can also be helpful when reading a book or menu in low-level lighting. Remember to take extra batteries.

4) Shoes – Every traveller needs a sturdy, comfortable pair of shoes. Shoes and sandals should have low heels and a rubber sole with a good tread. They should not slip off your feet. If you buy new shoes, wear them a few times before your trip to be sure they are comfortable and fit properly.

5) Baggage – Travel as lightly as possible. Perhaps use two lighter bags instead of one heavy one. Use bags and carry-ons with wheels and long pull handles that are easier to manage.

6) Medications

a) Make sure you pack an adequate supply of all your medications, vitamins and other supplements. Take enough for the duration of your trip plus a few days’ extra in case there is a change to your schedule. You must carry your medications in their original, labelled bottles and packaging.

b) If you take many medications and supplements and they are difficult to organize, ask your pharmacist to put them in a labelled blister pack. Pharmacy-labelled prescription medications will help you get through customs much more easily than unlabelled containers of “mystery” pills.

c) A note from your doctor may also help ensure easy passage for you and your medication through security and customs checkpoints, especially if you require the use of controlled substances, such as sleeping pills or narcotic pain killers, or need to carry needles for injectable medications such as insulin, Forteo® Prolia® or Evenity®. If your trip interrupts the timing of Prolia, ask your doctor if you can take it before or after the trip. If the timing of Evenity intersects with your trip, talk to your doctor.

d) Pay special attention to liquid medications. Without proper identification – the original prescription label and that note from your doctor – liquid medication may not be allowed through customs.

e) Does your medication need to be kept cool? Take it along in a small cooler with an ice pack. On the plane, you may be permitted to put your medication in a refrigerator while you re-freeze your ice pack in the plane’s freezer. Make sure you ask the airline ahead of time if they offer that service. Most hotels will offer you a small refrigerator.

f) Carry all of your medications with you in your purse or carry-on bag. This eliminates any problems if you are delayed or your luggage is lost.

g) Make a list with the names, addresses and contact information of all your doctors, family members and pharmacist to carry with you. Also bring a brief medical history, including a list of any allergies. Don’t forget to bring along any medic-alert information.

h) If you have concerns about travelling with medication, contact your airline provider to confirm details.

7) Insurance and emergency contacts – Carry your insurance coverage details and contact information with you and leave a copy with a friend or relative at home. Arrange to have someone whom you will contact if your ticket, passport or wallet is lost or stolen. Remember that telephones in other countries may work differently from in Canada. You may wish to carry the contact information for the Canadian Embassy of the country you are visiting.

Credit: COPN, the Canadian Osteoporosis Patient Network is the patient arm of Osteoporosis Canada, a national network of people living with osteoporosis. Get Unbreakable, COPN’s e-newsletter.

Brigadier-General (retired) Hilary Jaeger recognized as Honorary Fellow of the Royal College of Physicians and Surgeons of Canada

Brigadier-General (retired) Hilary Jaeger Osteoporosis Canada is pleased to share that long-time volunteer Dr. Hilary Jaeger is one of three leaders recognized as Honorary Fellows of the Royal College for her transformative contributions to health care and medical education.

Dr. Jaeger has been an ardent supporter and given her time in several capacities over the past decade to Osteoporosis Canada. She joined the Board of Directors in 2011 and served on various board committees, culminating in becoming Board Chair from 2015-2017. Dr. Jaeger also chaired the Strategic planning committee leading the completion of the OC Strategic Plan for 2016-2019.

Additionally, Dr. Jaeger’s contribution to the Fracture Liaison Service (FLS) program has been nothing short of outstanding, beginning with her role as part of the FLS Working Group which was responsible for the development of OC’s FLS Toolkit and continuing her service as Chair of the FLS Audit Committee and as a member of the FLS Advisory Committee. She continues to support all things related to FLS and recently presented a webinar, entitled, Economic and Business case for FLS.

Congratulations to Dr. Jaeger.

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Cooking Demo Webinar: Turkey Cranberry Pot Pie

Emily Richards, Professional Home Economist demonstrates this terrific recipe for Turkey Cranberry Pot Pie especially if you don’t want to cook a whole turkey for Thanksgiving. A great recipe if you are cooking for just one or two people. These individual pot pies are perfect to freeze to enjoy when you want the aroma of fall to re-mind you of the holidays or to have on hand any time. No need to roast a whole turkey for leftovers anymore! Each serving has 31g protein and calcium 225 mg per serving.

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© Osteoporosis Canada, 2024
Charitable Registration No. 89551 0931 RR 0001