Osteoporosis Canada has expanded its mandate to include rare bone diseases so that more Canadians can optimize their bone + muscle health.
By including rare bone diseases to its scope of advocacy, research and evidence-based education – Osteoporosis Canada can help meet the current and growing needs of those living with rare bone diseases needing support.
In a news release published in March 2023, Health Canada states “In Canada, one out of twelve people—many of whom are children—has a rare disease. There are thousands of different rare diseases that affect patients, their families and caregivers across the country. Unfortunately, treatments are only available for a small percentage of these conditions. Even when treatments that might dramatically improve the quality of a patient’s life are available, they are often unaffordable and out of reach.”
