Research Recruitment

Are You A Researcher?

Osteoporosis Canada will provide support for the recruitment of participants for ethical and reputable research relevant to Osteoporosis Canada’s vision and mission.

Learn more about Osteoporosis Canada’s Research Recruitment Policies and Procedures

 

Interested  in Participating in Patient Studies and Surveys?

Osteoporosis Canada is the only national organization serving people who have, or are at risk for, osteoporosis. Through research, Osteoporosis Canada works to educate, empower and support individuals and communities in the risk-reduction and treatment of osteoporosis.

Our Research Priority is to support clinical, translational and health outcomes research that focuses on the high fracture risk population, especially on preventing fractures and their negative consequences.

Through this link to Canadian research studies, Osteoporosis Canada targets to aid Canadian researchers seeking Canadian study participants and allow Osteoporosis Canada supporters to participate in osteoporosis research if  desired.

Current Studies and Surveys

The studies listed on this site have been reviewed by and received ethics committee approval.

Study title: Developing a Fracture Risk Clinical Assessment Protocol for Home and Long-term Care

Researcher: Dr. Alexandra Papaioannou

What

  • We are doing research to develop a Fracture Risk Clinical Assessment Protocol (CAP) for home and long term care through a stakeholder consensus process.
  • The CAP helps prevent fractures in by linking the best treatments (e.g. exercise, hip protectors, medication) to a person’s risk of fracture and their preferences
  • We would like to gather input from people with osteoporosis on this linkage and how to best share the information with the healthcare team
  • We are also gathering information about what research needs to be done to improve fracture prevention in home and long term care

Who

  • Long term care residents and their family members
  • Home care recipients and their family members

When

1. Initial in-Person Meeting
Location: Convenient location for participant
Timing: 1 hour
Date: June 2019

2. Fracture Prevention Meeting
Location: Toronto Airport ALT Hotel
Timing: 8:00am – 4:00pm
Date: October 16, 2019

For more information contact Dr. Caitlin McArthur:

mcarthurc@hhsc.ca

Tel: 905-521-2100 ext. 74161

Study title: UBC Study Looking to Interview People Who Have Participated in a Prescription Drug Clinical Trial

Participating Investigator: Dr. Colin Dormuth, Associate Professor, Department of Anesthesiology, Pharmacology & Therapeutics, University of British Columbia

What

Results of clinical trials are often not published, and researchers would like to hear what trial participants think.

Clinical trials are an important part of developing new drugs and providing the best medical care. However, about 4 in every 10 clinical trials are either not published or only published after a long delay. When clinical trials are not published, this means their results are not available to the wider scientific community, making it harder for researchers, doctors and others to know which drugs are safe and effective.

Why participate in this study?

Patients play a key role in research as participants in clinical trials, and learning their perspectives about clinical trials is important to improving medical research. We are interested to learn more about the experiences and views of people who have participated in a prescription drug clinical trial, especially to find out their views about the importance of publishing the results of trial research.

If you join the study and are interested to know whether the results of the trial you participated in have been published, we can try to find that out for you.

Who?

You are invited to participate in this study if:

  • You participated in a clinical trial of a prescription drug in Canada within the past 5 years and your participation ended at least 12 months ago.
  • You participated as a patient with a medical condition, rather than as a ‘healthy volunteer.’
  • You were 18 years or older when you participated in the trial.

Participation will involve an interview of about 60 minutes (at a time and place of the participant’s convenience). Interviews will usually be held in person for participants in Victoria or Vancouver and by phone for participants in other parts of BC or Canada. Some participants may be asked to do a 15-minute follow-up telephone interview, but this will not be required. Participants will receive a $50 honorarium for their time if they wish to receive it.

To volunteer or find out more

Those interested in participating or finding out more about the Inside Trials Study can contact PhD Candidate Richard Morrow at rlmorrow@mail.ubc.ca or visit www.InsideTrialsStudy.ca. If you are not sure whether you are eligible to participate, please feel free to ask.

Additional information about the study

The study will also involve interviews with clinical trial investigators, university administrators and research ethics board members to gain other perspectives on clinical trials and trial reporting. This study is part of a PhD thesis. Steps will be taken to protect the confidentiality of information provided during interviews. The Principal Investigator of the study is Dr. Colin Dormuth, Associate Professor, Department of Anesthesiology, Pharmacology & Therapeutics, University of British Columbia.